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Our Hero: The Crusade of Dr. Emil Kakkis '82 to hasten treatment for kids with rare diseases - Pomoma College Magazine, Winter 2011. |
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Novato doctor seeks cures for rare childhood diseases - Marin Independent Journal, December 18, 2010. |
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Dr. Emil Kakkis and 16 Other Rock Stars of Science Paired with 8 Rock Celebrities in GQ's December “Men of the Year” Issue - November 17, 2010
 
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Children’s Hospital Oakland Receives FDA Clearance to Begin World’s First Cyclodextrin Administration Into the Brains of Twins with Rare and Deadly Cholesterol Disease - Oakland Children’s Hospital, September 23, 2010. |
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Dr. Kakkis' video presentation at the 11th International Symposium on MPS and Related Diseases, in Adelaide, South Australia in June 2010.
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- Part 1 |
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- Part 2 |
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- Part 3 |
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Watch Senate H.E.L.P Committee Hearing on Treating Rare and Neglected Pediatric Diseases: Promoting the Development of New Treatments and Cures |
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A Great Win for Rare Diseases in U.S. Senate Appropriation Bill – Kakkis EveryLife Foundation - July 15, 2010 |
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Dr. Kakkis testifies at Congressional Hearing
Click Here to watch the webcast or read the written Testimony |
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Dr. Kakkis speaks at the FDA Hearing on Rare Diseases
Click Here to watch his presentation |
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"1st Annual EveryLife Art Contest Winners Announced" – Kakkis EveryLife Foundation, March 21, 2010 |
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KELF Update to our CureTheProcess Campaign Partners – March 16, 2010 |
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- View the Presentation |
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- Listen to the Presentation |
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Rare Disease Day 2010 in the News |
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- NORD President and CEO Peter L. Saltonstall on Larry King Live Facebook page. |
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- Discovery Health TV |
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- Not Crazy: Families Facing Rare Disease Unite, People Fighting Rare Diseases in the U.S. Number in the Millions - ABC News |
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- BioMarin Supports Observance of Rare Disease Day February 28 |
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- Millions Around World to Observe Rare Disease Day – BioTech Now |
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Battling Rare Diseases in a Blockbuster World - California Biomedical Industry 2010 Report |
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Foundation taps into JP Morgan Healthcare Conference Attendees to Accelerate Biotech Innovation for Rare Diseases - Kakkis EveryLife Foundation, January 10, 2010 |
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Dr. Kakkis Featured on the "PERSPECTIVES" PODCAST SERIES, presented by Children's Rare Disease Network.
Click Here to Listen to Emil’s Interview. |
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Dr. Emil Kakkis and Dr. Jenny Soriano complete $1 million pledge - National MPS Society News - December 2009 |
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LA BioMed’s Discovery Gala is a Big Success - November 12, 2009 |
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Dr. Kakkis receives Spirit of Excellence Award from the Los Angeles Biomedical Research Institute - November 6, 2009. |
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Debate Continues Over Patient Access to Investigational Drugs - Medscape Medical News, November 3, 2009 |
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New FDA Groups For Rare, Neglected Diseases Could Speed Path to Market – The Grey Sheet – Oct. 12, 2009 |
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Dr. Kakkis interviewed for the series of distinguished alumni of the Harbor-UCLA Pediatric Residency Program - October 10, 2009 |
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Patient Group Hopes Tweaks to Approps Bill Lead to New FDA Office - FDA Week – Oct. 9, 2009 |
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Rare Disease Legislative Advocates Meeting Recap in Legislative Update # 49 - National MPS Society, October 2009 |
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Senate and House Conferees Agree on Rare and Neglected Diseases Language, FDA Law Blog – October 2009 |
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Expanded Access Programs Vital, but New Rules Raise Concerns – Oct. 1, 2009
(Posted with permission of BioWorld Today, www.bioworld.com) |
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Patient Group Seeks New FDA Rare Disorder Office in Approps Bill – FDA Week Aug 28, 2009 |
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Senate Agriculture/FDA Appropriations Bill Amendment Seeks to Streamline Development and Regulation of Orphan Drugs and Neglected Diseases, FDA Law Blog - August 2009 |
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A Summary of the NORD Partners in Progress Summit, Washington, DC - May, 2009 |
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Dr. Kakkis’ presentation at NORD Summit, May 2009 — Accelerating Innovation for Rare Diseases |
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Dr. Kakkis, First Visiting Scientist of The Manton Center for Orphan Disease Research |
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Kakkis EveryLife Foundation Newsletters
June – July 2009
August – Sept 2009
October – November 2009
December 2009
February 2010
April 2010
August 2010
November 2010 |
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Click here for the ART CONTEST
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