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Archive
General
Uncategorized
General (14)
Date
Title
Comments
Rating
2011-08-15
The Right Person for the Job: FDA Commissioner Hamburg Appoints New Leadership
1
None
2011-07-11
Transitions in the battle for rare disease treatments
0
5
2011-02-27
RDLA, the Rare Disease Legislative Advocates: the story behind an association developed to help all rare disease groups succeed
5
4
2010-12-03
The Global Genes Fund: Innovation for medical science in the internet age
1
5
2010-08-03
Turning Science into Medicine – a Political Perspective
3
5
2010-05-11
May 15 is International MPS Awareness Day.
3
5
2010-04-24
Thanks to all our Partners and Friends for your calls to Senators Brownback and Kohl — it is working!
3
3
2010-04-15
The Time is Now to Improve the FDA's Specialization for Rare Diseases: Call Senators Kohl and Brownback Today
5
5
2010-02-18
Rare Disease Day February 28, 2010: Time to remember who we really are
4
5
2009-12-18
The end of the year is just the beginning: We are pressing forward to improve access to treatments for patients with the rarest disorders
9
3.6
2009-10-08
The Brownback/Brown Amendment to the FDA appropriations bill (H.R. 2997 § 740) Passes!
123
4.4
2009-08-14
Health care reform savings
65
3.3
2009-06-24
Support the FDA Even As We Seek to CURETHEPROCESS
81
5
2009-05-14
The Titanic in the treatment of rare diseases: When fear stops us from doing the right thing
42
4
Uncategorized (1)
Date
Title
Comments
Rating
2011-11-29
Unlocking Lifesaving Treatments for Rare diseases Act of 2012. HR 3737
1
5
Total
15 posts
346 comments
41 raters
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Archive
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Thanks to all our Partners and Friends for your calls to Senators Brownback and Kohl — it is working!
-
The Time is Now to Improve the FDA's Specialization for Rare Diseases: Call Senators Kohl and Brownback Today
-
Rare Disease Day February 28, 2010: Time to remember who we really are