Archive

RSSGeneral (14)

Date Title Comments Rating
2011-08-15 The Right Person for the Job: FDA Commissioner Hamburg Appoints New Leadership 1 None
2011-07-11 Transitions in the battle for rare disease treatments 0 5
2011-02-27 RDLA, the Rare Disease Legislative Advocates: the story behind an association developed to help all rare disease groups succeed 5 4
2010-12-03 The Global Genes Fund: Innovation for medical science in the internet age 1 5
2010-08-03 Turning Science into Medicine – a Political Perspective 3 5
2010-05-11 May 15 is International MPS Awareness Day. 3 5
2010-04-24 Thanks to all our Partners and Friends for your calls to Senators Brownback and Kohl — it is working! 3 3
2010-04-15 The Time is Now to Improve the FDA's Specialization for Rare Diseases: Call Senators Kohl and Brownback Today 5 5
2010-02-18 Rare Disease Day February 28, 2010: Time to remember who we really are 4 5
2009-12-18 The end of the year is just the beginning: We are pressing forward to improve access to treatments for patients with the rarest disorders 9 3.6
2009-10-08 The Brownback/Brown Amendment to the FDA appropriations bill (H.R. 2997 § 740) Passes! 123 4.4
2009-08-14 Health care reform savings 65 3.3
2009-06-24 Support the FDA Even As We Seek to CURETHEPROCESS 81 5
2009-05-14 The Titanic in the treatment of rare diseases: When fear stops us from doing the right thing 42 4

Uncategorized (1)

Date Title Comments Rating
2011-11-29 Unlocking Lifesaving Treatments for Rare diseases Act of 2012. HR 3737 1 5

Total

15 posts
346 comments
41 raters