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General
General (9)
Date
Title
Comments
Rating
2010-05-11
May 15 is International MPS Awareness Day.
0
5
2010-04-24
Thanks to all our Partners and Friends for your calls to Senators Brownback and Kohl — it is working!
0
3
2010-04-15
The Time is Now to Improve the FDA's Specialization for Rare Diseases: Call Senators Kohl and Brownback Today
2
5
2010-02-18
Rare Disease Day February 28, 2010: Time to remember who we really are
1
5
2009-12-18
The end of the year is just the beginning: We are pressing forward to improve access to treatments for patients with the rarest disorders
16
3.6
2009-10-08
The Brownback/Brown Amendment to the FDA appropriations bill (H.R. 2997 § 740) Passes!
123
4.4
2009-08-14
Health care reform savings
47
3.3
2009-06-24
Support the FDA Even As We Seek to CURETHEPROCESS
75
5
2009-05-14
The Titanic in the treatment of rare diseases: When fear stops us from doing the right thing
27
4
Total
9 posts
291 comments
27 raters
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Archive
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Thanks to all our Partners and Friends for your calls to Senators Brownback and Kohl — it is working!
-
The Time is Now to Improve the FDA's Specialization for Rare Diseases: Call Senators Kohl and Brownback Today
-
Rare Disease Day February 28, 2010: Time to remember who we really are