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RSSGeneral (9)

Date Title Comments Rating
2010-05-11 May 15 is International MPS Awareness Day. 0 5
2010-04-24 Thanks to all our Partners and Friends for your calls to Senators Brownback and Kohl — it is working! 0 3
2010-04-15 The Time is Now to Improve the FDA's Specialization for Rare Diseases: Call Senators Kohl and Brownback Today 2 5
2010-02-18 Rare Disease Day February 28, 2010: Time to remember who we really are 1 5
2009-12-18 The end of the year is just the beginning: We are pressing forward to improve access to treatments for patients with the rarest disorders 16 3.6
2009-10-08 The Brownback/Brown Amendment to the FDA appropriations bill (H.R. 2997 § 740) Passes! 123 4.4
2009-08-14 Health care reform savings 47 3.3
2009-06-24 Support the FDA Even As We Seek to CURETHEPROCESS 75 5
2009-05-14 The Titanic in the treatment of rare diseases: When fear stops us from doing the right thing 27 4

Total

9 posts
291 comments
27 raters
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-  Thanks to all our Partners and Friends for your calls to Senators Brownback and Kohl — it is working!
 
-  The Time is Now to Improve the FDA's Specialization for Rare Diseases: Call Senators Kohl and Brownback Today
 
-  Rare Disease Day February 28, 2010: Time to remember who we really are
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