EveryLife Foundation for Rare Diseases

No disease too rare merchandise

Limited edition posters, t-shirts & pens. Get yours today and help support the foundation.

Online tools to write your
Congress Member
Latest news from the
Rare Disease Congressional Caucus
www.RareDiseaseLegislativeAdvocates.org

Workshop #3: Use of Surrogate Endpoints in Rare Disease Treatment Development
Presentations available for viewing

Click to view presentations from Workshops #1 & #2

	U.S. Representatives Stearns (R-FL) & Towns (D-NY), introduce legislation to spur the development of rare disease treatments: Unlocking Lifesaving Treatments for Rare diseases Act of 2012, H.R. 3737
	Read Emil's Blog on H.R. 3737, the ULTRA Act

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